Grayson got to see another therapy volunteer! A guy with a guitar came in to see us, just when G started having a rough day. He played some really nice music, and we got to request Twinkle Twinkle Little Star which made Grayson happy. Grayson kept reaching for the guitar, so the volunteer let him hold it while he played. It was the Grayson remix :) What a nice thing that this guy spends his Saturday afternoons helping kids have a better day.
Saturday night, Grayson got his last lead taken out. No more wires! I'll admit, it had been kind of fun to see his heart rate change depending on his activities. I could tell when he was truly asleep or about to wake up. And when he watched Baby Einstein on the iPad, he nearly flatlined. It was hilarious. It's his zen place. We suspected as much. He still has his JP in, but we safety pinned the bulb to his gown. We finally got to take him down the hall for a walk, which he loved. He traveled with his favorite music (Iz) on the phone. I can also comfort him and put him back to sleep at night without being tethered to the wall! We let him play on a blanket for awhile, and he seemed to be so happy finally being able to crawl around.
Saturday night, Grayson got his last lead taken out. No more wires! I'll admit, it had been kind of fun to see his heart rate change depending on his activities. I could tell when he was truly asleep or about to wake up. And when he watched Baby Einstein on the iPad, he nearly flatlined. It was hilarious. It's his zen place. We suspected as much. He still has his JP in, but we safety pinned the bulb to his gown. We finally got to take him down the hall for a walk, which he loved. He traveled with his favorite music (Iz) on the phone. I can also comfort him and put him back to sleep at night without being tethered to the wall! We let him play on a blanket for awhile, and he seemed to be so happy finally being able to crawl around.
